Called Friday to check on the intermittent leave approval/denial and the word was no word. However, nice rep lady on the phone said that everything looked good for getting the approval, the only thing pending was... the approval. She said she would send a note to the rep that needed to click the button and that if I hadn't gotten a call letting me know the outcome one way or another by lunchtime Mon to give them a call back and check in. Easy peasy. Remembered to call Dr S's office in allergy and talked to their nurse who talked to the doc who of course wanted me to come in and talk options and I politely told them I couldn't so nurse lady said she'd see what Dr S could come up with and get back to me Mon. Been on the whole not taking the Zyrtek-D since my appt with Dr N last week and dude... allergies not happy. It's not...awful, as I had expected, but I'm definitely making with the kleenex more than I'd like. I'm sure we'll figure something out.
No call yet from the schedulers for the infusion. Guess when I told J to have them hold off on calling till the leave thing was certain she took me seriously. After this episode of Buffy is over, going to watch the Rituxan dvd. Have to get it over with and know what's the come. Wish I had someone here to watch it with me. I'm sure the drug will do exactly what it's supposed to and I'll feel fine and there won't be any crazy side effects and I'll get the nice 6 months w/o pain,but.... just need that hand to hold telling me that it's all going to be ok even if it's not. Just in case.
**addition: DVD's largest section was 'here's all the bad shit that could happen'. Understandably. Overall, though, this stuff really seems to have helped folks and they look so incredibly relieved to be able to live their day to day lives how they want without having to worry about what doing one little thing could lead to days of pain. Think they sold me on it. Still think it's going to hoover, but right now the idear of no pain for an extended amount of time and ditching the prednisone vs an added chance of getting sick more often and having cold-like symptoms among a few other things really makes doing the infusions seem worth it overall.
Here's hoping.
I'm hoping for you too. I had no idea you had a blog. That's probably because I read facebook like a zombie.
ReplyDeleteJust started this one not too terribly long ago as a way to keep my medical drama off the fb public view cause no one likes to read about the yuck all the time, ya know? So I figured having a blog meant those who wanted to see what was going on on the backend of my world could and those who just like seeing the random bits of shiny/not shiny could stick to just reading the fb.
ReplyDeleteAppreciate ya stopping by and thanks for the hoping for me too *hugs*